3 years ago
I have reluctantly gone here too many times; hopin...
I have reluctantly gone here too many times; hoping the experience would change. This place is incompetent; full of arrogant doctors, PAs, and other staff that have no empathy, not to mention, misdiagnosing you and most importantly causing you more harm in the end. DO NO HARM is a term that's thrown around but not practiced, not understood and done in so many ways, physically, physiologically and if you wan to separate it out, emotionally and mentally. Unless you are having a heart attack, stroke, were shot, stabbed, beaten, having so called "acute" problems like a rupture, bleeding out, AMS...forget it! The outpatient system fails to address your needs (esp as someone who has been on the other side of the coin, working as a PA in IM/Primary, UC, inpatient Hepatology)...especially if you become the dreaded "chronic pain" patient they like to label you as or stigmatize your as a head case, in need of psychiatric intervention if god for sake you push to get help. Chronic pain and the chronic "invisible illnesses" that go along with these and the resultant depression and anxiety are a HUGE problem in our country. Not being dealt with or managed on an outpatient basis and when acute exacerbations arise (although you've been suffering alone without help and mismanagement or ignored...labeled psychosomatic or malingering) and your only option is to go to the ED, especially when your neurologist sends your there, or your primary is unavailable for weeks and the nurse tells you to go to the ED and you coalesce...it's no different. UCH is a big shiny place that likes to profess all of these accolades i.e. billboards, aka marketing are everywhere) in specialties (talk about cancer and other research/treatments that are already well funded therefore the university gets NIH and other grants; or publicize "touching" stories that don't tell the whole truth (I won't name specifics or names to not hurt these people as I believe they lucked out...but their story is a mixed, scandalous one and yet they (she) is viewed as a saint, a hero. It's all marketing and BS. Where if the devotion to research for people like me and so many others that have no access to care; no providers in the state of Colorado, yet most of the west for Ehlers-Danlos Syndromes, Small fiber Neuropathy, POTS disorder, Dysautonomia, a few among many that lack awareness, research, funding and therefore treatment. So we're left to suffer from the consequences these genetic, acquired or deemed idiopathic disorders reek havoc on our bodies with no treatment (only "symptomatic" which often results in side effects, advise events, exacerbating other conditions, poypharmacy, and frankly don't usually help let alone stop disease progression. But we have no one that understands or chooses to do learn more; help their patient by doing no harm and treating us although we may LOOK fine. Are we choosing to only practice tertiary, sick care in medicine anymore? Treat and street, is that still the motto of the ED...seems to be. Let it be someone else problem until they come in too sick anymore, have a stoke or dissection, falls with injuries and concussions, let alone ending their life in some manner or form to do loss of hope, lack of help. So prior experience....one instance, I avoided going in bc I thought it was a UTI but trying OTC did nothing; I waited &got in to someone at the UCH famMED /+UTI...waited hrs oral ABX but became febrile, 103+, chills, terrible back stomach, pelvic pain (hx chronic pp) so mom in town, a nurse, insists I got to ED...I go to UCH bc they have my records on file. Mind you, I just had 2 surgeries AND a PE (pulm embolism) a month earlier dx'd at diff hospital.Informed them of as well as trial of leftover leftover oxy & percocet (from sure) didn't touch. What did they do... oral tylenol, no IV pain, no work up (W hx of GU issues & aforementioned). I get a resident asking REZ ?s & dx PID despite no sex for years due to PP:.tons of ABXs: cz sevGI prob; all STD/even yeastALL NEG.Pt Adv/ED defended him.They don't listen or care;DON'T GO HERE!