About PSP Association
PSP Association: Providing Support and Information to People Living with PSP and CBD
PSP Association (PSPA) is a national charity that aims to improve the lives of people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). PSPA was founded in 1994 by a group of individuals who were affected by PSP, a rare neurodegenerative disease that affects the brain. Since then, the organization has grown into a leading authority on PSP and CBD, providing support, information, and funding for research into treatments and ultimately a cure.
The mission of PSPA is to provide support for people living with these conditions while also raising awareness about them. The organization offers various services such as helpline support, online forums, local groups, information resources, advocacy work, fundraising events etc. These services are designed to help people affected by these conditions feel less isolated while also providing them with practical advice on how to manage their symptoms.
One of the key strengths of PSPA is its commitment to funding research into treatments for these conditions. The organization works closely with researchers around the world to identify potential therapies that could slow down or even halt disease progression. To date, it has funded over £10 million in research projects aimed at finding better ways to diagnose and treat these diseases.
In addition to its research efforts, PSPA also plays an important role in raising awareness about these conditions among healthcare professionals as well as the general public. Through its campaigns such as "Time Matters" which highlights early diagnosis importance or "Rare Disease Day", it aims at educating people about what they can do if they suspect someone may have one of these diseases.
Overall,PSPA's work has had a significant impact on improving the lives of those affected by PSP and CBD. Its commitment towards supporting patients through various means including funding research projects makes it stand out from other organizations working in this field.
If you or someone you know is living with either condition mentioned above then do not hesitate reaching out for help from this amazing charity!