Alissa Weller

Review of Primary Children's Medical Cen...

When my son was diagnosed with epilepsy at PCMC th...

When my son was diagnosed with epilepsy at PCMC the neurologist was very abrupt in breaking the news and scared us with the list of things he won't be able to do, but gave us little useful information. Each time I called to report another grand mal seizure I was given a medical assistant or nurse to talk to. The neurologist has never actually spoken to us in almost 2 years since the diagnosis. Fortunately we have had good visits with the nurse practitioner and she has been the one to call us about medication changes and to order testing. Seizures are now under control and the nurse practitioner has moved to a different position, so we are basically left high and dry now.
Over a week ago I called to ask questions about possible medication side effects, and was told that I would get a call back that day. Nobody called. After a week I called again....telling them it was regarding medication side effects, which seems like it might be an important topic for a physician to address, and was PROMISED a call back by the end of the day. Yep, three days later and I have had no call. All this while we are sacrificing to pay for multiple $8000 EEGs. (Btw, for these tests I was required to stay in the room with my son for approximately 20 hours each time.... except to go to the cafeteria to buy food since I wasn't allowed to order food for myself from room service, that was only for the patient. You would think when I am being billed $500 for a doctor to come in for 5 minutes to say hello to my kid that they could at least give me a damn sandwich for "free"). Extremely disappointed in our care and nervous about how to find a new neurologist when there are none in our community (we have been traveling almost 100 miles for each visit and test at PCMC).