I wouldn t recommend this facility if it was the o...

I wouldn t recommend this facility if it was the only option for medical care. My husband has been a Crohns patient since 2013. We ve always tried to go along with their recommendations but if we ve ever disagreed or challenged their reasonings for certain things, it s been like pulling teeth to consider his needs as the patient. His doctors do not care about anything that we have to say regarding his condition. They write off everything we say regarding medication, probiotics, diet, excercise or any opinions we have regarding his treatment options. If we don t agree with them then we re against them. If it doesn t go with their recommendations then it s irrelevant.
They contradict themselves a lot. They say my husband only really has one medication left to try after his current one stops working but it s crucial that they do the next colonoscopy to see how much inflammation he has. My husband doesn t have as much inflammation because his inflammation levels have gone down and they (his doctor in our town) was able to go farther during the last colonoscopy. They re saying it s a preventative if we allow them to do the next colonoscopy. What I don t understand is if we only have one medication left and there isn t as much inflammation then what are we preventing? I think she s (Vandy Dr) upset because she wasn t able to go as far and now she wants her chance. I understand the want to perform the colonoscopy herself but we live over an hour away and we ve tried to explain that we don t have anyone that has the time to take off to bring my husband and we cannot afford to stay in a hotel. I feel like they think we are lying because they keep trying to force the issue like we have an extra $400 lying around that we aren t being honest about. We can get the same procedure done locally but that doesn t ever seem to be good enough. We can only do what we can do.
If you re reading this you re probably wondering why we haven t switched doctors. We would but that would stop the current medication my husband is on and he needs that medication. If he misses that medication he could get very sick very quickly, so we feel trapped. I dread appointments here because I feel like my husband is thought more of as an experiment and less as a human because our needs are never considered and he is the one that s a patient.
Keep in mind this is a research hospital. The doctors here will only talk about whatever it is that their data shows. An example with Crohn s disease your diet is a major factor, when we brought up my husband started a new diet that s high in protein and calcium but also bland and won t give him much (if any) inflammation, they said they didn t believe diet was a factor because they haven t done studies on it.
Don t go here. This might be a leading research hospital but consider that word research very carefully because that s what you will be considered. Research.

EDIT: they actually sent my husband a letter in the mail saying they ve tried to contact him several times and he s failed to respond. They ve not called once since his appointment or sent him any messages. My thought is they re trying to coax an answer regarding whether or not he can have a colonoscopy in Nashville even thought we ve explained our situation multiple times on why we cannot have it done in Nashville vs having it done locally.