About NephCure Kidney International
NephCure Kidney International is a non-profit organization that is dedicated to accelerating research and finding a cure for Nephrotic Syndrome, FSGS, and other rare, protein-spilling kidney diseases. The organization was founded in 2000 by parents of children with Nephrotic Syndrome who were frustrated with the lack of progress being made in finding a cure for this debilitating disease.
Since its inception, NephCure has been at the forefront of research into these rare kidney diseases. The organization has funded over $50 million in research grants to date and has helped to establish several centers of excellence across the United States that are focused on researching these conditions.
One of the key goals of NephCure is to raise awareness about these rare kidney diseases. Many people have never heard of Nephrotic Syndrome or FSGS, which can make it difficult for patients to get an accurate diagnosis and access appropriate treatment. By raising awareness about these conditions, NephCure hopes to improve outcomes for patients and accelerate progress towards finding a cure.
In addition to funding research and raising awareness, NephCure also provides support services for patients and their families. This includes connecting patients with medical experts who specialize in treating these conditions as well as providing educational resources about managing symptoms and living with chronic kidney disease.
If you or someone you love has been diagnosed with Nephrotic Syndrome or FSGS, it can be overwhelming trying to navigate the healthcare system on your own. That's where organizations like NephCure come in - they provide much-needed support services that can help make life easier for patients and their families.
Overall, if you're looking for an organization that is making a real difference in the fight against rare kidney diseases like Nephrotic Syndrome and FSGS, look no further than NephCure Kidney International. With their focus on funding cutting-edge research projects, raising awareness about these conditions among healthcare professionals and the general public alike, providing support services for patients & families alike - they are truly making strides towards finding a cure!