4 years ago
Update: they just texted me to check me test resul...
Update: they just texted me to check me test results, that said my brain cancer might be growing back...On a Saturday night. I can t even call to talk to anyone til Monday. That is beyond messed up and might be a sign of the times. Call your reps, they don t treat us like human beings anymore. Where is the compassion?
I have had one great experience here surrounded by just heaps and heaps of awful. I have been going through treatment for cancer and seizures for 3 years so I know this hospital pretty well. I have gotten 3 messed up bills. One claiming I owed them more money than I have, I recieved it on a Friday and I had to sit on it til Monday. I called and asked if it was possible to double check the bills or not send them out on Fridays because stress is awful for people and they are in the business of healthcare. They said no. No solutions. Mistakes are keep being made and they won t do anything about it because a computer is in charge. Really lame and not compassionate answer. I really tried to come up with a solution with them and they were clearly just listening to appease me.
My Neuro told me I was getting an EEG to test my base line brain waves and when I went in, it was in a BEDROOM alone with a strange man. And I was later told they were trying to induce a seizure actually.
I go unconscious when I have seizures. They didn t tell me I would be headed into a bedroom alone with a strange man who would try and provoke a seizure? They didn t think that was necessary information?
I get the sense they feel they can just do whatever because we have no other options and it s true. But that s the wrong way to be and I am just horrified.
Ask questions, bring a friend, record every conversation. Stay safe.
Also, stomach problems for 20 years. They did not help. They do not recognize leaky gut. They want to just prescribe prescribe prescribe, but not write a recommendation for medical cannabis. Which has saved my life. I live and thrive with brain injury, connective tissue disorder, GI issues, PTSD, cancer and seizures because of my cannabis. And they made me feel so awful about even asking about it a few years back. I hope their attitude changes because I had to spend a lot out of pocket and drive hours out of town to get a doctor to sign off and I had Brain Cancer. Talk about a lack of compassion.
Oh, and one time I went to the ER with a friend and the whole ER waiting room was really aware and kept letting the staff know, that there was a man bleeding in the waiting room. They had bagged up the injury, but the bag was filling with blood. He seemed very sleepy. We were there for 15 minutes and the staff had been told 2 times before the man, who was nodding off, began to have a seizure. He had a bag full of blood wrapped around his ankle. Why was he not being tended to? When he started to seize they went in to action. But, not until then?
Doctors and hospitals have liability insurance. They make boatloads of money practicing incompetence. Where is there insentive to help us?