Liams CDHjourney Review of Children's Hosptial Colorado
Our son was diagnosed with a congenital diaphragma...
Our son was diagnosed with a congenital diaphragmatic hernia on Sept. 18, 2018 at 20 weeks gestation. It was a terrifying diagnosis with several possible outcomes, which is not at all reassuring. From the moment we were referred to CHC, we knew our son would be getting the best possible care. Our very first meeting with his care team was a relief. We received pertinent information and they created the best plan for our son. They explained everything concisely and never made us feel as if any question were unwelcome. Every time we had an appointment predelivery, our fears were put at ease. Not entirely gone because this is a devastating disease and not every baby survives it. But we were confident that they would do no less than their absolute best to make sure our baby survived and thrived. Our confidence in Dr. Marwen and the rest of our son s care team was not mislaid. From our very first appointment we knew they cared about our son. The labor and delivery team were amazing too. I feel it went much better than it would have anywhere else. And our son was taken care of from the moment he was born. Immediately after birth the plan from his care team started to unfold exactly the way they said. Our son spent 71 days in the NICU. At one week old, Dr. Marwen performed the surgery to repair our son s herniated diaphragm. The surgery went very well, mainly because of the expertise of our son s surgical team. Every time our son achieved a victory, his care team couldn t have been more excited for him. Our son had very few setbacks. I feel that he had so few because of how wonderful his care team was. They took such amazing care of him from day one. Every doctor and nurse and clinical assistant and respiratory therapist had fantastic bedside manner. I imagine that his follow up appointments will be comprised of the same care as he and our whole family have already received. Thank you all for what you have done for our baby. And thank you, Children s, for having such an excellent CDH program. -Rhianna and Ken Colvin
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