My son has loweys Dietz syndrome and has been foll...

My son has loweys Dietz syndrome and has been followed by a pediatric cardiologist at Brenner's for 5yrs. He retired and we were assigned a Dr that new nothing about this syndrome and advised if you find a new Dr in a new facility. I felt abandoned and screwed basically. I have found a whole new staff of drs at Duke. Thankfully they gladly took his case but they r a hr n half away and if something goes wrong with my son's aorta where would i go in an er situation. As far as all his other Dr at Brenner's i have had nothing but great experiences. He has about 6 drs there total.