Lynne Miller

Review of Texas Children's Hosptial

My grandson was diagnosed with Velo-Cardio-Facial ...

My grandson was diagnosed with Velo-Cardio-Facial Syndrome. He had an MRI in Austin 5 years ago but threw up the entire time. Unhappy with the treatment in Austin, she contacted the Texas Children's Hospital for a second opinion. It was a disaster - the Hospital scheduled an MRI, an EKG and an Echo. Once TCH learned my grandson was on Medicaid, the appointments began getting cancelled. The only test completed without controversy was the EKG. Once the THC learned he was on Medicaid, the Echo was cancelled because of the MRI. The MRI was cancelled in favor of the Echo. The Echo technician brought in a senior tech with more experience but that did not seem to make a difference.
We spoke to the head of the MRI department, two cardiologists and an anesthesiologist who ended up walking out of the consultation. We left the hospital with no answers; the Echo showed no problem with his swallowing. Unfortunately that was not the issue; the issue was a possible aneurysm of the aorta. No matter how many times we repeated this, we got the same response. For a second opinion, the doctor needed the MRI from 5 years before. My grandson's appointment was on 5/2. Today is 5/10 and no word from the cardiologist. Texas Children's Hospital may be good, but only if you have good insurance or money.