My mom was a patient at the ALS clinic. They see t...

My mom was a patient at the ALS clinic. They see their patients once every 3 months for clinic and other than that they provide no help or guidance. Every time you call for help it goes to voicemail and takes their staff about a week to call you back if they call you at all. We are happy to participate in research and studies, but the clinic is more about that then patient care. Very sad how little they care. When you have a loved one suffering with ALS you need help and guidance- none of that was provided. Very frustrating when something as devastating as ALS affects a family member and you are unable to get help from the one clinic that is supposed to help!