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Stacy Umana

4 years ago

I was their excellant excellent candidate for lase...

I was their excellant excellent candidate for laser ablation in 2016 so they said. They didn't go in as deep as they thought they would thank God or I would be really really messed up. I went through almost a year of testing to take the chance that this might help my uncontrolled seizures. Turns out all my testing showed that my focus point was exactly as I had in 2000 at UCSF. Not really hard to see where they are coming from when I had open surgery years back for removal of an avm at that same spot. Not the less they were very proud they "found my location" and I could be #78 there at the Sacramento Sutter hospital. I woke up from surgery w major blurry vision and unable to read. My surgeon Dr Samuel Circillo never came to see me after surgery. He only sent his nurse who could not and would not answer my questions. I drove back for my follow up appointment from out of town, for him to be a no call no show once again. I had major hypersensitivity to noises and had to get therapy in order to learn to read again. I also have to take 3 medications now and had my 1st grand mal ever! I did not expect to get seizure free, but I did expect a little less activity but most certainly not worse!!
My epileptologist send me to talk to a Dr in San Francisco who read my case at Sac. Sutter hospital and he said they make it look clean and perfect on paper. I guess none of my "oopsy" got put on their records so they are so happy with their Success. I have had seizures most of my life and met many many doctors but I am so completely discusted by this team that my trust is absolutely gone. I feel like I was just research and nobody took the blame
Now their is a device for people like me called Neuropace and if Sutter hadn't messed me up. I may have gone for it.

Don't put your faith in this proud "team." I asked for the good, the bad and the ugly when deciding to do laser ablation and they had nothig bad to say. I also asked many many times to speak to a recent and recovering patient whom they did have someone call me but guess what? She had never even had brain suegery! Just wanted to chat about seizures.

I am still fighting and had about 10 partial seizures today but please don't ever go through this as their research. How dare they show this as a success and not even show up. Very unprofessional!

Stacy Umana

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