Vivli has a tremendous collection of valuable research data! Their website is top-notch, allowing users to access the information they need quickly and easily. I particularly appreciate the organization and categorization of the data, making it a breeze to find what I'm looking for. Highly recommended!
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The website offers a good range of resources, but the user interface could be more user-friendly. It's a valuable platform for researchers and professionals.
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Research data has never been so easily accessible! Thanks to Vivli, researchers like me can find the data we need quickly. The website's user-friendly interface makes browsing a joy, and their vast collection of research materials is impressive. Kudos to the team behind this wonderful platform!
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Vivli: Promoting Global Data Sharing for Clinical Research
Vivli is a non-profit organization that aims to promote, coordinate, and facilitate the sharing and reuse of clinical research data on a global scale. The organization was founded in 2013 with the goal of creating a sustainable data-sharing enterprise that would benefit researchers, patients, and society as a whole.
Clinical research is essential for advancing medical knowledge and improving patient care. However, much of the valuable data generated by clinical trials remains inaccessible to other researchers due to various barriers such as legal restrictions, lack of standardization in data formats, and concerns about privacy and confidentiality. This results in wasted resources and missed opportunities for scientific discovery.
Vivli seeks to overcome these barriers by providing a platform for sharing clinical research data that is secure, standardized, and accessible to qualified researchers worldwide. The organization works with stakeholders from academia, industry, government agencies, patient advocacy groups, and other organizations to develop policies and practices that promote responsible data sharing while protecting the rights of patients who participate in clinical trials.
One key aspect of Vivli's work is its Data Sharing Platform (DSP), which provides an online portal where researchers can search for available datasets from various sources around the world. The DSP also includes tools for requesting access to datasets based on predefined criteria such as study design or disease area. Once access is granted by the dataset owner or sponsor (who retains control over their own data), researchers can download the de-identified datasets along with documentation describing how they were collected.
Another important component of Vivli's mission is education and outreach. The organization offers training programs on best practices for managing clinical research data throughout its lifecycle – from planning studies through publication – as well as webinars on specific topics related to data sharing. Vivli also collaborates with other organizations such as the International Committee of Medical Journal Editors (ICMJE) to develop guidelines for authors submitting manuscripts based on shared data.
Vivli's efforts have already had a significant impact on the field of clinical research. Since its launch, the organization has facilitated access to over 5,000 datasets from more than 50 countries, covering a wide range of therapeutic areas and study designs. This has led to numerous publications in high-impact journals and new insights into disease mechanisms and treatment options.
In addition to its core activities, Vivli also engages in advocacy for policies that support data sharing and reuse. The organization works with policymakers at the national and international levels to promote open science principles and ensure that regulations do not hinder scientific progress.
Overall, Vivli is a vital resource for anyone involved in clinical research who wants to maximize the value of their data while contributing to the advancement of medical knowledge. By promoting global data sharing through its platform, education programs, and advocacy efforts, Vivli is helping researchers overcome barriers that have long hindered progress in this field.
vivli.org
