About The neuro foundation
The Neuro Foundation: Providing Support and Raising Awareness for Nerve Tumours
The Neuro Foundation, formerly known as Nerve Tumours UK, is a national charity that provides support to individuals and families affected by nerve tumours. The foundation aims to raise awareness about these conditions and improve the quality of life for those living with them.
Nerve tumours are a group of rare genetic disorders that affect the nervous system. These conditions can cause benign or malignant tumours to grow on nerves throughout the body, leading to a range of symptoms such as pain, weakness, numbness, and loss of function. Some common types of nerve tumours include neurofibromatosis (NF), Schwannomatosis (SWN), and Legius Syndrome.
The Neuro Foundation was established in 1981 by a group of parents who were concerned about the lack of information and support available for families affected by NF. Since then, the foundation has grown into a leading charity that provides vital services to thousands of people across the UK.
One of the key services provided by The Neuro Foundation is its helpline. This service offers confidential advice and support to anyone affected by nerve tumours – whether they are patients themselves or family members seeking information on behalf of loved ones. The helpline is staffed by trained volunteers who have personal experience with nerve tumours and can offer practical advice on managing symptoms, accessing medical care, and coping with emotional challenges.
In addition to its helpline service, The Neuro Foundation also runs local support groups across the UK. These groups provide an opportunity for people living with nerve tumours to connect with others who understand their experiences. They offer a safe space where individuals can share their stories, ask questions, learn from each other's experiences and receive emotional support from others going through similar situations.
Another important aspect of The Neuro Foundation's work is raising awareness about nerve tumour conditions among healthcare professionals as well as the general public. The foundation provides training and resources to healthcare professionals to help them better understand these conditions and provide appropriate care for patients. It also works to raise awareness about nerve tumours through campaigns, events, and social media.
The Neuro Foundation is committed to funding research into nerve tumour conditions. The charity has invested millions of pounds in research projects over the years, with the aim of improving our understanding of these conditions and developing new treatments that can improve outcomes for patients.
Overall, The Neuro Foundation is a vital resource for anyone affected by nerve tumours in the UK. Its services provide practical support, emotional comfort, and hope for a better future. By raising awareness about these rare conditions and funding research into their causes and treatments, the foundation is making a real difference in the lives of thousands of people across the country.