About The myositis association
The Myositis Association: Providing Education, Research, and Support to the Myositis Community
The Myositis Association is a non-profit organization that is dedicated to providing education, research, and support to individuals who are affected by myositis. The organization was founded in 1993 by a group of patients who were seeking information about their condition and wanted to connect with others who were going through similar experiences.
Myositis is a rare autoimmune disease that affects the muscles and can cause weakness, fatigue, and other symptoms. There are several different types of myositis, including polymyositis (PM), dermatomyositis (DM), inclusion body myositis (IBM), juvenile myositis (JM), and necrotizing autoimmune myopathy (NAM). While there is no cure for myositis at this time, there are treatments available that can help manage symptoms and improve quality of life.
At The Myositis Association, we believe that education is key to helping individuals with myositis understand their condition better. We offer a wide range of educational resources on our website for patients, caregivers, healthcare professionals as well as the general public. Our resources include articles on various aspects of living with myositits such as diagnosis & treatment options; coping strategies; nutrition & exercise tips; clinical trials & research updates etc.
We also provide support services for those affected by this disease. Our online community forum allows members from all over the world to connect with each other in real-time discussions about their experiences living with this condition. Additionally we have local support groups across USA where people can meet face-to-face or virtually via video conferencing platforms like Zoom etc., share stories & learn from each other's experiences.
In addition to providing education and support services for those affected by this disease we also fund research into finding new treatments or even cure for it! We have invested millions of dollars into research projects aimed at understanding more about how these diseases work so that better therapies can be developed in future.
Our mission at The Myositits Association is simple: To improve lives today while working towards a cure tomorrow! We strive every day towards achieving our goal through our various programs which include:
1) Patient Education - Providing accurate information about diagnosis & treatment options; coping strategies; nutrition & exercise tips etc.
2) Support Services - Offering emotional support through online forums or local groups.
3) Advocacy - Raising awareness among policymakers regarding issues affecting people living with rare diseases like mine.
4) Research Funding - Investing millions into cutting-edge scientific studies aimed at finding new therapies/cures!
We believe strongly in collaboration between patients/caregivers/healthcare professionals/researchers/government agencies/pharmaceutical companies etc., so we work closely together whenever possible towards achieving common goals related to improving outcomes for people living with rare diseases like mine!
In conclusion if you're looking for reliable information on how best manage your condition or want connect others going through similar experience then look no further than The Myositits Association! With its wealth educational resources/support services/research funding opportunities available here you'll find everything need stay informed empowered while navigating journey managing your health effectively!