About Sickle cell society
The Sickle Cell Society: Empowering Lives Affected by Sickle Cell Disorder
Sickle cell disorder is a genetic blood condition that affects millions of people worldwide. It is a lifelong condition that can cause severe pain, organ damage, and other complications. The Sickle Cell Society is an organization dedicated to supporting and representing people affected by sickle cell disorder to improve their overall quality of life.
Founded in 1979, the Sickle Cell Society has been at the forefront of raising awareness about sickle cell disorder and advocating for better treatment options for those living with the condition. The organization provides a range of services to support individuals and families affected by sickle cell disorder, including information and advice, advocacy, emotional support, practical assistance, and educational resources.
One of the key objectives of the Sickle Cell Society is to raise awareness about sickle cell disorder among healthcare professionals and policymakers. The organization works closely with medical professionals to ensure that patients receive appropriate care and treatment for their condition. It also advocates for policies that promote research into new treatments for sickle cell disorder.
The Sickle Cell Society also provides a range of educational resources aimed at increasing public understanding about sickle cell disorder. These resources include leaflets, posters, videos, online courses, webinars, conferences and workshops on various aspects related to this genetic blood condition.
In addition to its advocacy work on behalf of those living with sickle cell disease or trait (SCD), the society also supports research into new treatments for this debilitating illness through its funding program which awards grants annually towards innovative research projects aimed at improving patient outcomes.
The society's website serves as an excellent resource hub where individuals can access information on various aspects related to this genetic blood condition such as symptoms management tips; latest news updates; upcoming events; fundraising opportunities etc., all designed specifically around empowering lives affected by this chronic illness.
Overall Quality Of Life Improvement
The ultimate goal of the Sickle Cell Society is to improve the overall quality of life for people affected by sickle cell disorder. The organization recognizes that living with this condition can be challenging, and it strives to provide support and resources that help individuals and families cope with the physical, emotional, and practical aspects of their illness.
The Sickle Cell Society's services are available to anyone affected by sickle cell disorder, regardless of age or ethnicity. The organization works closely with other charities, healthcare providers, policymakers, and researchers to ensure that people living with sickle cell disorder receive the best possible care and support.
In conclusion
The Sickle Cell Society is a vital resource for anyone affected by sickle cell disorder. Its commitment to raising awareness about this genetic blood condition has helped improve treatment options for those living with the condition. Through its advocacy work, educational resources, research funding program as well as its website which serves as an excellent resource hub; it continues empowering lives affected by this chronic illness towards an improved overall quality of life.