About Sickle cell disease association of america, inc.
Sickle Cell Disease Association of America, Inc. (SCDAA) is a non-profit organization that aims to improve the quality of life for individuals and families affected by sickle cell disease (SCD). SCD is an inherited blood disorder that affects red blood cells, causing them to become rigid and crescent-shaped instead of round. This abnormal shape makes it difficult for the cells to pass through small blood vessels, leading to blockages that can cause pain, organ damage, and other complications.
The SCDAA was founded in 1971 by a group of concerned parents whose children were affected by SCD. Since then, the organization has grown into a national network of chapters and affiliates dedicated to providing education, advocacy, and support for individuals with SCD and their families.
One of the primary goals of the SCDAA is to raise awareness about sickle cell disease among healthcare providers, policymakers, and the general public. The organization provides educational resources on its website about various aspects of SCD including symptoms, diagnosis, treatment options as well as information on clinical trials.
In addition to education efforts aimed at increasing awareness about sickle cell disease among healthcare professionals and policymakers alike; The association also advocates for policies that improve access to care for people with sickle cell disease. They work closely with lawmakers at both state and federal levels advocating for policies such as increased funding for research into new treatments or cures.
The association also provides support services such as counseling services or financial assistance programs designed specifically for those living with sickle cell disease or their caregivers. These programs help alleviate some of the financial burdens associated with managing this chronic condition while also providing emotional support during difficult times.
Another important aspect of what they do is raising funds through donations from individuals or corporations who want to help make a difference in improving outcomes related specifically towards those living with this condition. These funds are used towards research initiatives aimed at finding new treatments or cures while also supporting community outreach efforts designed specifically around educating others about this condition so they can better understand how it impacts those living with it daily.
Overall if you are looking for an organization dedicated solely towards improving outcomes related specifically towards those living with sickle cell disease then look no further than The Sick Cell Disease Association Of America Inc., where you will find all sorts resources available online including educational materials on symptoms/diagnosis/treatment options along advocacy efforts aimed at improving access care while providing emotional support during difficult times!