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The Sickle Cell Association of Texas - Marc Thomas Foundation is a non-profit organization that has been championing for all families affected by sickle cell disease and sickle cell trait since 1997. The foundation was established in honor of Marc Thomas, who lost his life to sickle cell disease at the young age of 21. Since then, the foundation has been dedicated to raising awareness about sickle cell disease and providing support to those affected by it.
Sickle cell disease is a genetic blood disorder that affects millions of people worldwide. It causes red blood cells to become misshapen and break down prematurely, leading to a range of health problems such as anemia, pain crises, organ damage, and increased risk of infections. Sickle cell trait is a carrier state where an individual inherits one copy of the abnormal gene but does not develop the full-blown disease.
The Sickle Cell Association of Texas - Marc Thomas Foundation aims to improve the quality of life for individuals with sickle cell disease and their families through education, advocacy, research, and community outreach programs. The foundation provides various services such as counseling, financial assistance for medical expenses, educational scholarships for students with sickle cell disease or trait, support groups for patients and caregivers alike.
One notable program offered by the foundation is Camp Cell-A-Bration β a summer camp designed specifically for children with sickle cell disease or trait. This camp provides a safe environment where children can have fun while learning about their condition from medical professionals and other experts in the field.
The foundation also collaborates with healthcare providers across Texas to ensure that patients receive optimal care based on evidence-based guidelines. They work closely with hospitals and clinics to provide training on best practices in managing acute pain episodes associated with sickle cell crisis.
In addition to its local efforts in Texas communities affected by this condition; The Sickle Cell Association Of Texas - Marc Thomas Foundation also participates in national advocacy efforts to raise awareness about sickle cell disease and promote research for better treatments and a cure. They work with other organizations such as the Sickle Cell Disease Association of America, the National Institutes of Health, and the Centers for Disease Control and Prevention to advance their mission.
Overall, The Sickle Cell Association Of Texas - Marc Thomas Foundation is an essential resource for individuals with sickle cell disease or trait in Texas. Their commitment to education, advocacy, research, and community outreach has made a significant impact on improving the lives of those affected by this condition. If you or someone you know is living with sickle cell disease or trait in Texas, consider reaching out to this foundation for support.
sicklecelltx.org
