About Scottish spina bifida association
The Scottish Spina Bifida Association (SSBA) is a non-profit organization that provides support and information to individuals and families affected by spina bifida and/or hydrocephalus. The association was founded in 1965, with the aim of improving the lives of those living with these conditions.
Spina bifida is a birth defect that affects the spinal cord, while hydrocephalus is a condition where there is an excess accumulation of cerebrospinal fluid in the brain. These conditions can have significant impacts on an individual's physical, emotional, and social well-being.
The SSBA offers a range of services to support individuals with spina bifida and/or hydrocephalus throughout their lifetime. This includes providing information about these conditions, as well as practical advice on how to manage them. The association also offers emotional support through counseling services for both individuals and families.
In addition to this, the SSBA provides financial assistance for equipment such as wheelchairs or communication aids that may be necessary for those living with spina bifida or hydrocephalus. They also offer grants for educational purposes such as college tuition fees or vocational training courses.
The association works closely with healthcare professionals to ensure that individuals receive appropriate medical care throughout their lives. They also advocate for improved healthcare provision for those living with spina bifida or hydrocephalus.
One of the key aims of the SSBA is to promote social inclusion for those affected by these conditions. They organize events such as sports days and family weekends away which provide opportunities for people to come together in a supportive environment.
The Scottish Spina Bifida Association relies heavily on donations from members of the public in order to continue providing its vital services. Fundraising events are held regularly throughout Scotland, including sponsored walks and charity balls.
In conclusion, if you or someone you know has been affected by spina bifida or hydrocephalus then it's important to know that there is support available. The Scottish Spina Bifida Association provides a lifetime commitment of support and information to all those affected by these conditions. Their services are invaluable in helping individuals and families to manage the challenges that come with living with spina bifida or hydrocephalus. By supporting the SSBA, you can help ensure that they can continue to provide their vital services for years to come.