About Scleroderma & raynaud's uk
Scleroderma & Raynaud's UK: Improving Lives of People with Scleroderma and Raynaud's Phenomenon
Scleroderma & Raynaud's UK (SRUK) is a health charity that is dedicated to improving the lives of people who are affected by scleroderma and Raynaud's phenomenon. The organization was founded in 2016, and since then, it has been working tirelessly to raise awareness about these conditions, provide support to those who are affected by them, and fund research into finding better treatments.
Scleroderma is a rare autoimmune disease that affects the connective tissues in the body. It causes hardening and thickening of the skin, as well as damage to internal organs such as the lungs, heart, kidneys, and digestive system. Raynaud's phenomenon is a condition where blood vessels in the fingers and toes constrict when exposed to cold temperatures or stress. This can cause pain, numbness, tingling sensations or color changes in these areas.
SRUK recognizes that living with scleroderma or Raynaud's can be challenging for patients and their families. That’s why they offer a range of services designed to help people cope with these conditions more effectively. These include:
1) Information resources: SRUK provides comprehensive information on scleroderma and Raynaud’s through its website (www.sruk.co.uk). Patients can access information on symptoms, diagnosis methods available treatments options.
2) Support groups: SRUK runs support groups across the UK where patients can meet others who have similar experiences living with scleroderma or Raynauds’. These groups provide an opportunity for individuals to share their stories while receiving emotional support from others going through similar challenges.
3) Helpline: SRUK operates a helpline service which provides confidential advice on all aspects related to scleroderma or Raynaud’s. The helpline is staffed by trained volunteers who are knowledgeable about these conditions and can provide guidance on how to manage symptoms, access treatments, and cope with the emotional impact of living with these conditions.
4) Research: SRUK funds research into scleroderma and Raynaud's phenomenon to improve understanding of the causes, develop new treatments, and ultimately find a cure for these conditions. The organization has already funded several research projects in this area.
5) Awareness campaigns: SRUK runs awareness campaigns throughout the year to raise public awareness about scleroderma and Raynaud's phenomenon. These campaigns aim to educate people about the symptoms of these conditions so that they can seek medical help early if they suspect they may be affected.
SRUK is committed to improving the lives of people affected by scleroderma or Raynaud's phenomenon. They work tirelessly to ensure that patients have access to information, support services, treatment options while also funding research into finding better treatments for these debilitating diseases.
In conclusion, Scleroderma & Raynaud's UK is an essential organization that provides vital support services for individuals living with scleroderma or Raynauds’. Their commitment towards raising awareness about these rare autoimmune diseases while funding research into finding better treatment options makes them a valuable asset in improving patient outcomes. If you or someone you know is affected by scleroderma or Raynauds’, do not hesitate to reach out for help from SRUK today!