About Pituitary network association
The Pituitary Network Association: Empowering Patients with Pituitary Tumors and Disorders
The Pituitary Network Association (PNA) is a non-profit organization that provides support, education, and advocacy for patients with pituitary tumors and disorders. Founded in 1992 by a group of patients who recognized the need for more information and resources, PNA has grown into an international network of patients, families, healthcare providers, and researchers.
Pituitary tumors are abnormal growths that develop in the pituitary gland – a small gland located at the base of the brain. These tumors can cause a range of symptoms depending on their size and location. Some common symptoms include headaches, vision problems, fatigue, weight gain or loss, mood changes, infertility or sexual dysfunction.
Pituitary disorders can also result from damage to the pituitary gland due to surgery or radiation therapy. These conditions can affect hormone production leading to hormonal imbalances such as hypothyroidism or adrenal insufficiency.
The PNA is dedicated to improving the lives of those affected by these conditions through education and support programs. The organization offers a variety of resources including online forums where patients can connect with others who share similar experiences; educational materials such as brochures and webinars; patient conferences where attendees can learn about new treatments and research developments; advocacy efforts aimed at increasing awareness about these conditions among policymakers; funding for research projects focused on finding better treatments for pituitary tumors.
One unique aspect of PNA's work is its focus on patient empowerment. The organization believes that informed patients are better able to manage their condition effectively. To this end, PNA provides tools such as its "Patient Resource Center" which includes information on treatment options as well as tips for managing side effects like fatigue or depression.
Another important aspect of PNA's work is its commitment to advancing research into these conditions. The organization funds grants aimed at supporting innovative research projects focused on understanding how these tumors develop and identifying new treatment options.
In addition to its work supporting patients directly through education programs and advocacy efforts aimed at improving access to care – PNA also works closely with healthcare providers treating these conditions. Through partnerships with medical societies like the Endocrine Society – PNA helps ensure that physicians have access to up-to-date information about best practices in diagnosis/treatment so they can provide optimal care for their patients.
Overall – The Pituitary Network Association plays an essential role in providing support services for those affected by pituitary tumors/disorders while also working towards advancing our understanding/ability to treat them effectively through funding innovative research projects focused on developing new therapies/treatments/options available today!
pituitary.org
