About Parent project muscular dystrophy
Parent Project Muscular Dystrophy (PPMD) is a non-profit organization that is dedicated to ending Duchenne muscular dystrophy. This debilitating disease affects approximately 1 in every 3,500 boys worldwide and is caused by a genetic mutation that prevents the body from producing a protein called dystrophin. Without this protein, muscles gradually weaken and waste away, leading to difficulty walking, breathing, and ultimately premature death.
PPMD was founded in 1994 by parents of children with Duchenne muscular dystrophy who were frustrated with the lack of progress being made towards finding a cure for their children's condition. Since then, PPMD has become the largest non-profit organization in the United States focused solely on ending Duchenne muscular dystrophy.
One of PPMD's primary goals is to accelerate research into potential treatments and cures for Duchenne muscular dystrophy. To achieve this goal, PPMD funds research projects at leading universities and medical centers around the world. In addition to funding research directly, PPMD also works closely with pharmaceutical companies to help them develop new therapies for Duchenne muscular dystrophy.
Another important aspect of PPMD's work is advocating for policies that support families affected by Duchenne muscular dystrophy. This includes working with lawmakers at both the state and federal level to ensure that families have access to high-quality healthcare services and other resources they need to manage their child's condition.
PPMD also provides support services directly to families affected by Duchenne muscular dystrophy through its network of certified clinics across the United States. These clinics provide comprehensive care for individuals living with Duchenne muscular dystrophy as well as their families.
In addition to its work within the United States, PPMD also collaborates with organizations around the world on efforts aimed at ending Duchenne muscular dystrophy globally. This includes supporting research projects in countries such as Canada, Australia, Japan, and Europe.
Overall, Parent Project Muscular Dystrophy (PPMD) plays an essential role in fighting against one of the most devastating diseases affecting young boys today -Duchene Muscular Dystropy-. Through its efforts towards accelerating research into potential treatments or cures; advocating policies that support affected families; providing direct support services; collaborating globally- it has become an indispensable resource for those impacted by this disease worldwide.