About Ocular melanoma foundation
Ocular Melanoma Foundation: The Leading Resource for Eye Cancer Information, Patient Support, and Directed Research
The Ocular Melanoma Foundation (OMF) is a non-profit organization that has been providing valuable resources to patients with eye cancer since 2003. With over 50,000 visitors per year to its website, OMF is the leading resource for eye cancer information, patient support and directed research.
OMF's mission is to raise awareness about ocular melanoma (OM), provide support to those affected by this rare form of cancer and fund research towards finding a cure. The foundation was founded by a group of OM patients who recognized the need for more information and support in dealing with this disease.
One of the key features of OMF's website is its comprehensive library of information on OM. Patients can find detailed explanations about the disease itself, as well as treatment options available. This includes both traditional treatments such as radiation therapy or surgery as well as newer therapies like immunotherapy or targeted therapy.
In addition to providing information on treatment options, OMF also offers counseling services through its website. Patients can connect with trained counselors who can help them navigate their diagnosis and provide emotional support during what can be a difficult time.
Another unique feature of OMF's website is its private social network called the OMF Patient Forum. This forum allows patients from around the world to connect with each other in a safe and supportive environment. Members can share their experiences with others who understand what they are going through and offer advice or encouragement when needed.
OMF also hosts an annual Eye Am Not Alone (EANA) Patient Retreat which brings together OM patients from around the world for education, networking opportunities and emotional support. The retreats are held at top medical centers such as DanaFarber Cancer Institute in Boston or Cleveland Clinic’s Taussig Cancer Center where participants have access to some of the best medical professionals in their field.
OMF is also committed to funding research towards finding a cure for OM. The foundation has partnered with leading researchers in the field and has funded numerous studies aimed at understanding the disease better and developing new treatments.
In conclusion, OMF is an invaluable resource for anyone affected by ocular melanoma. With its comprehensive library of information, counseling services, private social network and patient retreats, OMF provides patients with the support they need during what can be a difficult time. Additionally, its commitment to funding research towards finding a cure makes it an important player in the fight against OM.