About Little hearts matter
Little Hearts Matter: A UK Charity Offering Support to Those Affected by Single Ventricle Heart Condition
Little Hearts Matter is a national UK charity that provides support and assistance to anyone affected by the diagnosis of single ventricle heart condition. The organization was founded in 1994 by parents who had children with this condition, and it has since grown into a well-respected charity that helps families across the country.
Single ventricle heart condition is a complex congenital heart defect that affects approximately 500 babies born in the UK each year. It occurs when one of the two lower chambers of the heart (the ventricles) does not develop properly, leaving only one functional pumping chamber. This can lead to a range of health problems, including poor circulation, breathing difficulties, and developmental delays.
At Little Hearts Matter, we understand how challenging it can be for families dealing with this diagnosis. That's why we offer a range of services designed to provide practical and emotional support throughout every stage of their journey.
One of our key services is our helpline, which is staffed by trained volunteers who have personal experience with single ventricle heart condition. They are available to answer questions and provide guidance on everything from medical treatments to financial assistance.
We also offer family support days where families can come together for fun activities while also learning more about their child's condition from medical professionals. These events are an excellent opportunity for parents to connect with others who are going through similar experiences and build lasting friendships.
In addition to these services, Little Hearts Matter provides educational resources for both families and healthcare professionals. We work closely with hospitals across the country to ensure that they have access to up-to-date information on single ventricle heart conditions so they can provide the best possible care for their patients.
Our fundraising efforts help us continue providing these vital services free-of-charge so that no family has to face this diagnosis alone. We rely on the generosity of our supporters to fund research, provide equipment and supplies, and offer financial assistance to families in need.
If you or someone you know has been affected by single ventricle heart condition, please don't hesitate to reach out to Little Hearts Matter. We are here to help every step of the way.