About Hydrocephalus Association
Hydrocephalus Association: Finding a Cure and Improving Lives
Hydrocephalus is a condition that affects the brain, causing an abnormal accumulation of cerebrospinal fluid (CSF) in the ventricles. This can lead to increased pressure on the brain, which can cause damage and even death if left untreated. The Hydrocephalus Association is a non-profit organization dedicated to finding a cure for hydrocephalus and improving the lives of those impacted by this condition.
The Hydrocephalus Association was founded in 1983 by parents of children with hydrocephalus who were frustrated with the lack of information and resources available at that time. Since then, it has grown into one of the leading organizations in the world dedicated to hydrocephalus research, education, advocacy, and support.
One of the primary goals of the Hydrocephalus Association is to find a cure for hydrocephalus. To achieve this goal, they fund research projects around the world that focus on understanding how hydrocephalus develops and identifying new treatments that can improve outcomes for patients. They also work closely with researchers to ensure that their findings are translated into clinical practice as quickly as possible.
In addition to funding research projects, the Hydrocephalus Association provides education and support services for patients and their families. They offer online resources such as webinars, fact sheets, videos, podcasts etc., which provide information about diagnosis,treatment options ,and living with hydrocepalus .They also organize local support groups where people affected by hydrocepalus can connect with others who understand what they are going through.
Another important aspect of their work is advocacy.They advocate for policies at state,federal level so that people affected by hydocepalus have access to quality care ,treatment options,and insurance coverage.Their advocacy efforts have led to significant improvements in access to care for people living with hydocepalus across United States .
The Hydrocepahlus association relies heavily on donations from individuals,corporations,and foundations .These donations help them fund critical research projects,support services,and advocacy efforts.They also organize fundraising events throughout year like walks,races etc.,to raise awareness about hydocepalus .
In conclusion,the mission statement "to find a cure for hydocepalus" may seem ambitious but it's not impossible.The Hydocepahlus association has made significant progress over past few decades towards achieving this goal.However there's still much more work needs be done .With continued support from donors,researchers,policy makers,and volunteers we will get closer each day towards finding cure while improving lives those impacted by this condition .