About Gbs|cidp foundation international
The GBS CIDP Foundation International is a leading non-profit organization that is dedicated to providing support, education, and advocacy for individuals who are affected by Guillain-Barré syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), multifocal motor neuropathy (MMN), and other related disorders. The foundation was established in 1980 with the aim of improving the lives of patients and their families through research, awareness campaigns, and community outreach programs.
Guillain-Barré syndrome is a rare autoimmune disorder that affects the peripheral nervous system. It can cause muscle weakness, paralysis, and even death in severe cases. Chronic inflammatory demyelinating polyneuropathy is another rare neurological disorder that causes damage to the myelin sheath surrounding nerve fibers. Multifocal motor neuropathy is a type of peripheral neuropathy that affects only motor nerves.
The GBS CIDP Foundation International has been at the forefront of research into these disorders for over four decades. The foundation funds cutting-edge research projects aimed at finding better treatments and ultimately a cure for these debilitating conditions. In addition to funding research initiatives, the foundation also provides educational resources for patients, caregivers, healthcare professionals, and researchers.
One of the key objectives of the GBS CIDP Foundation International is to raise awareness about these disorders among healthcare professionals as well as members of the general public. Through its various awareness campaigns such as World GBS Awareness Day on June 10th each year or its annual Walk & Roll event held across different cities in North America every September - October period; it aims to educate people about these conditions so they can recognize symptoms early on which could lead to earlier diagnosis & treatment.
The foundation also offers support services such as patient advocacy programs where trained volunteers provide emotional support & guidance throughout their journey with these disorders; financial assistance programs which help cover medical expenses not covered by insurance or government assistance; peer-to-peer support groups where patients can connect with others who have similar experiences; online forums where members can share information & advice on managing symptoms or coping strategies etc.
In conclusion: The GBS CIDP Foundation International has been instrumental in advancing our understanding of Guillain-Barré syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), multifocal motor neuropathy (MMN) - three rare neurological disorders affecting millions worldwide - through its commitment towards funding innovative research projects aimed at finding better treatments while providing education resources like patient advocacy programs or peer-to-peer support groups along with raising awareness campaigns globally so more people know about them sooner rather than later!
gbs-cidp.org
