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The FSH Muscular Dystrophy Society: Join the Fight to Cure FSHD Muscular Dystrophy
Muscular dystrophy is a group of genetic disorders that cause progressive muscle weakness and wasting. One of the most common types is facioscapulohumeral muscular dystrophy (FSHD), which affects approximately 1 in 8,000 people worldwide. FSHD primarily affects the muscles of the face, shoulders, and upper arms, but can also involve other muscles such as those in the legs and trunk.
The FSH Muscular Dystrophy Society is a non-profit organization dedicated to finding a cure for FSHD muscular dystrophy. Founded by patients and families affected by this debilitating disease, our mission is to raise awareness about FSHD, support research efforts to find effective treatments and ultimately a cure for this condition.
If you or someone you know has been newly or recently diagnosed with FSHD muscular dystrophy, we encourage you to get involved with our organization. There are several ways that you can help us in our fight against this disease:
Volunteer: We are always looking for volunteers who are passionate about making a difference in the lives of those affected by FSHD muscular dystrophy. Whether it's helping out at one of our fundraising events or spreading awareness about our cause on social media, there are many ways that you can contribute your time and talents.
Join: By becoming a member of the FSH Muscular Dystrophy Society, you will have access to valuable resources such as educational materials about living with FSHD muscular dystrophy as well as updates on research developments related to this condition.
Donate: Your financial support is critical in helping us fund research efforts aimed at finding effective treatments and ultimately a cure for FSHD muscular dystrophy. Every donation counts - no matter how big or small - so please consider making a contribution today.
At the heart of everything we do at the FSH Muscular Dystrophy Society is our commitment to improving the lives of those affected by this condition. We believe that through collaboration between patients, families, researchers and healthcare professionals we can make significant progress towards finding effective treatments for this disease.
Our organization works closely with leading researchers around the world who are dedicated to studying various aspects of muscle biology including genetics, cell biology and clinical trials testing new therapies aimed at slowing down or reversing muscle damage caused by diseases like FSDH muscular dystropy.
We also collaborate with other patient advocacy groups focused on rare diseases like ours so that we can share knowledge across different conditions while working together towards common goals such as increasing funding opportunities from government agencies like NIH (National Institutes Of Health) which provides grants supporting medical research projects across America.
In conclusion,
If you're looking for an opportunity to make an impact on people's lives while fighting against one particular type of rare genetic disorder called Facioscapulohumeral (FSHD) then look no further than The FSF Muscular Dystropy society! Our mission statement says it all- "Get Involved In The Fight To Cure Facioscapulohumeral (FSHD) Muscular Dystropy". With your help through volunteering time & talent; joining membership programs; donating funds towards medical research projects aimed at discovering new therapies capable enough not only slow down but reverse muscle damage caused due these diseases- together we'll be able achieve great things!
fshsociety.org
