About Courage to shine
Courage to Shine: Empowering Individuals with Bladder Exstrophy
Courage to Shine is a non-profit organization that aims to empower individuals with bladder exstrophy, a rare congenital condition that affects the urinary system. Founded in 2009 by Thomas Exler, Courage to Shine has been providing support and resources for patients and families affected by this condition.
The organization's mission is to raise awareness about bladder exstrophy and provide education, advocacy, and support for those living with it. Courage to Shine believes that every individual deserves the opportunity to live their life without limitations or barriers caused by their medical condition.
One of the ways Courage to Shine achieves its mission is through organizing events such as the International Exstrophy Conference and the A-BE-C Great Lakes Chapter 12th Annual Summer Campout. These events bring together patients, families, healthcare professionals, and researchers from around the world who share a common interest in bladder exstrophy.
The International Exstrophy Conference is an annual event that provides an opportunity for attendees to learn about new research findings related to bladder exstrophy. The conference also features workshops on topics such as self-care strategies for patients living with this condition.
The A-BE-C Great Lakes Chapter 12th Annual Summer Campout is another event organized by Courage to Shine. This campout provides an opportunity for children affected by bladder exstrophy and their families to connect with others who share similar experiences. The campout includes activities such as swimming, hiking, arts & crafts, games & sports.
Courage To Shine also recognizes individuals who have shown exceptional courage in overcoming challenges associated with bladder exstrophy through its Lisha Martinez & Adam Young Award program. Briten Douglas was awarded this prestigious award in 2019 due his outstanding achievements despite his medical challenges.
Briten Douglas was born on October 27th in 1986 with bladder exstrophy but he did not let his condition define him. He has become an inspiration to many people around the world by sharing his story and advocating for individuals with bladder exstrophy. Briten Douglas is a true embodiment of Courage to Shine's mission.
Courage to Shine also provides resources such as educational materials, support groups, and online forums for patients and families affected by bladder exstrophy. These resources help individuals living with this condition to connect with others who share similar experiences and learn about new treatment options.
In conclusion, Courage to Shine is a non-profit organization that is dedicated to empowering individuals with bladder exstrophy. Through its events, awards program, and resources, Courage To Shine has been able to raise awareness about this rare medical condition while providing support for those affected by it. If you or someone you know is living with bladder exstrophy, consider reaching out to Courage To Shine for support and guidance on how best to manage the condition.