About Cmv action
CMV Action: Providing Support and Advice to Families Affected by Congenital CMV
CMV Action is a UK-based charity that provides support and advice to families affected by congenital cytomegalovirus (cCMV). The charity was founded in 1986 by a group of parents who were concerned about the lack of information and support available for families affected by cCMV. Since then, CMV Action has been working tirelessly to raise awareness about cCMV, provide support to affected families, and fund research into the condition.
Congenital cytomegalovirus (cCMV) is a common virus that can cause serious health problems in babies if it is passed from mother to baby during pregnancy. It is estimated that around 1 in every 200 babies are born with cCMV in the UK each year. However, many people have never heard of cCMV, and there is often little information or support available for families who are affected.
This is where CMV Action comes in. The charity provides a range of services designed to help families affected by cCMV. These include:
- Information and advice: CMV Action provides comprehensive information about cCMV on its website, including details about how the virus is transmitted, what symptoms it can cause, and how it can be diagnosed and treated. The charity also offers one-to-one advice via email or phone for anyone who needs more specific information or guidance.
- Support groups: CMV Action runs several online support groups for parents/carers of children with cCMC. These groups provide a safe space where people can share their experiences, ask questions, offer advice and support each other.
- Awareness-raising campaigns: One of the key aims of CMv action is to raise awareness about cCCMV among healthcare professionals as well as members of the public. The charity runs regular campaigns aimed at increasing understanding about this condition and the impact it can have on families.
- Fundraising: CMV Action relies on donations and fundraising to continue its work. The charity organises a range of events throughout the year, including sponsored walks, runs and bike rides, as well as other fundraising activities such as auctions and raffles.
CMV Action is run by a team of dedicated volunteers who are passionate about raising awareness about cCMV and supporting affected families. The charity is funded entirely by donations from individuals, companies and trusts.
In addition to its support services for families affected by cCMV, CMV Action also funds research into the condition. The charity has supported a number of research projects over the years aimed at improving our understanding of cCMV and developing new treatments for those affected.
Overall, CMv action plays an important role in providing support and advice to families affected by congenital cytomegalovirus (cCMV). Through its information services, support groups, awareness-raising campaigns and fundraising activities, the charity is helping to improve understanding about this condition while also providing vital support to those who need it most.
cmvaction.org.uk
