About Cerebral palsy support network
Cerebral Palsy Support Network: Empowering Individuals with Cerebral Palsy and Their Families
Cerebral palsy is a neurological disorder that affects movement, posture, and muscle coordination. It is caused by damage to the developing brain before, during, or shortly after birth. While there is no cure for cerebral palsy, early intervention and ongoing support can help individuals with this condition lead fulfilling lives.
The Cerebral Palsy Support Network (CPSN) is a non-profit organization that aims to empower individuals with cerebral palsy and their families in Victoria. Based in Melbourne, CPSN provides information, resources, and support to children and adults with cerebral palsy.
Founded in 2005 by a group of parents of children with cerebral palsy who saw the need for more support services in Victoria, CPSN has grown into the peak-body representing individuals with cerebral palsy in the state. The organization's mission is to improve the quality of life for people living with this condition by providing them with access to information about treatments and therapies as well as emotional support.
One of CPSN's primary goals is to connect families affected by cerebral palsy so they can share experiences and learn from each other. The organization hosts regular events such as family fun days where families can come together for socializing and networking. CPSN also offers peer mentoring programs where individuals living with cerebral palsy can connect one-on-one with others who have similar experiences.
In addition to its community-building efforts, CPSN provides practical resources such as assistive technology equipment loans through its Equipment Library program. This program allows individuals living with cerebral palsy to try out different types of equipment before making a purchase decision.
CPSN also offers educational resources such as workshops on topics like navigating the National Disability Insurance Scheme (NDIS) or understanding legal rights related to disability discrimination. These workshops are designed not only for individuals living with cerebral palsy but also for their families and caregivers.
Another important aspect of CPSN's work is advocacy. The organization works to raise awareness about cerebral palsy and the challenges faced by individuals living with this condition. CPSN advocates for policy changes that will improve access to services and support for people with cerebral palsy.
CPSN's impact can be seen in the stories of individuals who have benefited from its programs and services. For example, one family shared how CPSN helped them navigate the NDIS application process, which can be overwhelming for many families. Another individual shared how CPSN's peer mentoring program helped her connect with others who understood what it was like to live with cerebral palsy.
In conclusion, the Cerebral Palsy Support Network is a vital resource for individuals living with cerebral palsy and their families in Victoria. Through its community-building efforts, practical resources, educational workshops, and advocacy work, CPSN empowers people affected by this condition to lead fulfilling lives. If you or someone you know is living with cerebral palsy in Victoria, consider reaching out to CPSN to learn more about its programs and services.