About Cdh international
CDH International: The Leading Charity for Congenital Diaphragmatic Hernia
CDH International is the world's oldest, largest, and leading charity for Congenital Diaphragmatic Hernia (CDH). Established in 1995, our mission is to help families of babies born with CDH by providing support services, promoting research, and raising awareness.
Congenital Diaphragmatic Hernia is a rare birth defect that affects approximately 1 in every 2,500 babies. It occurs when the diaphragm fails to fully form during fetal development. This results in a hole in the diaphragm that allows abdominal organs to move into the chest cavity and compress the lungs. CDH can cause severe respiratory distress and other life-threatening complications.
At CDH International, we understand how overwhelming it can be for families who receive a CDH diagnosis. That's why we offer a range of support services to help them navigate this difficult journey. Our team of volunteers includes parents who have been through similar experiences and can provide emotional support and practical advice.
We also provide financial assistance to families who need help covering medical expenses related to their child's CDH treatment. We believe that no family should have to choose between providing their child with life-saving care or going into debt.
In addition to supporting patient families directly, we are committed to advancing research on CDH. We fund grants for scientists studying this condition so that they can develop new treatments and improve outcomes for patients.
One of our most significant contributions has been creating the CDH Patient Registry - an international database that collects information about patients with CDH from around the world. This registry helps researchers better understand this condition by identifying patterns in patient data.
At CDHI, we are proud of our grassroots community raising awareness about Congenital Diaphragmatic Hernia worldwide through various campaigns such as World Congenital Diaphragmatic Hernia Awareness Day which takes place every year on April 19th. We believe that by raising awareness, we can help more families get the support they need and improve outcomes for CDH patients.
In conclusion, CDH International is a vital resource for families affected by Congenital Diaphragmatic Hernia. Our commitment to providing support services, promoting research, and raising awareness has made us the leading charity in this field. If you or someone you know has been impacted by CDH, please reach out to us for help and support. Together we can make a difference in the lives of these precious babies and their families.