Was great at 1st, about 2 months into it as my mot...

Was great at 1st, about 2 months into it as my mother worsened, so did her hospice care.
- moms leg swelled up 3 times it size, was told to just elevate it.
- abscess on arm got worse on antibiotics, after 3 hours of waiting by phone was told to just take her to ER, was now almost 11pm.
- asked nurse if she was going to change bandage on wound. Was told it was fine and didn't need to be changed. Had to point on to a "trained professional" that it was not even covering the wound!
- had to basically figure out on my own how to try to manage her pain.
- left equipment she could no longer use at my house for 3 weeks.
- never got the bedside bathroom chair we asked for
- basically begged for help over her last weekend home, no one came till Monday. Had to threaten to put mom in hospital or call the health department to get them to take her to Hospice House as she could no longer walk and was on the floor screaming in pain.
- Called at 3pm the next day and was told they changed her status from agitated to resident and that it would now cost me $360 per day out of pocket, even though she could no longer walk. Agreed to pay the $360 that night as she couldn't be placed in Nursing Home until the next day.
- Called at 10am the next morning and was told that I now owe $720!!
- Had to argue with Hospice Social Worker about where mom was going to be placed. Was also told to not call the nursing home I wanted mom to go to and harass them. I called them "1" time that morning and had a very pleasant conversation.
- When Hospice of Savannah sent over moms medical history to the new hospice, they blacked out her social security number. When I asked why, they said it was against "hipaa laws".
Overall very bad experience. As professionals they should have saw that I was in way over my head. There were some very caring people that I dealt with, but, for the most part, felt like it was all about the money.
****RESPONSE *******
telephone is fine, you guys have me on file. My mother has passed now by the way, that is less then 2 weeks after you guys said her condition was under control.