International scleroderma network

The International Scleroderma Network (ISN) is a nonprofit organization that has been providing exceptional research, support, information and awareness about scleroderma worldwide. The organization was founded in 1998 by Shelley Ensz, who was diagnosed with scleroderma herself. Since then, the ISN has been dedicated to improving the lives of people affected by this rare autoimmune disease.

Scleroderma is a chronic connective tissue disorder that affects the skin and internal organs. It is characterized by hardening and thickening of the skin due to excessive collagen production. This can lead to various complications such as joint pain, digestive problems, lung damage and kidney failure. Scleroderma can affect anyone regardless of age or gender but it is more common in women than men.

The ISN's mission is to promote awareness about scleroderma among patients, healthcare professionals and the general public. They provide valuable resources such as educational materials, support groups and online forums where patients can connect with each other for emotional support and share their experiences.

One of the key initiatives of ISN is their research program which aims to find better treatments for scleroderma through clinical trials and collaborations with leading researchers around the world. They also fundraise for research grants which are awarded to promising projects that have potential to make significant contributions towards understanding this complex disease.

In addition to their research efforts, ISN also provides financial assistance for patients who need help covering medical expenses related to their condition. They offer travel grants for patients who need to attend medical appointments or participate in clinical trials outside their local area.

The International Scleroderma Network has received numerous accolades over the years for its outstanding work in raising awareness about scleroderma globally. Their website serves as an invaluable resource hub where visitors can access up-to-date information on various aspects of this disease including diagnosis, treatment options and coping strategies.

In conclusion, the International Scleroderma Network is a remarkable nonprofit organization that has been making a significant impact in the lives of people affected by scleroderma. Their dedication to research, support, information and awareness has helped countless patients and their families cope with this challenging disease. If you or someone you know is living with scleroderma, we highly recommend checking out ISN's website for valuable resources and support.