Societe Provided
Maria Potter
Cure SMA is an outstanding organization. Their dedication to supporting families affected by spinal muscular atrophy is truly remarkable. Their website, curesma.org, is a valuable resource for information and resources. The work they do to raise awareness and funding for research is making a real difference in the lives of those living with this devastating disease. I am grateful for their commitment and highly recommend their services.
Justin Nichols
๐ The team at Cure SMA is doing an incredible job supporting families affected by spinal muscular atrophy. Their website, curesma.org, is a fantastic resource for information and community support. I am impressed with their dedication and commitment to making a difference. Keep up the excellent work! ๐
Jim Crawford
I recently discovered an incredible organization that supports families affected by spinal muscular atrophy. Their website is a valuable source of information and resources. The work they do is truly admirable. I highly recommend Cure SMA to anyone in need of support.
Melanie Mitchell
I recently came across an amazing organization that supports families affected by spinal muscular atrophy. Their website provides valuable resources and information. The work they do is truly inspiring. I highly recommend Cure SMA for anyone seeking support in dealing with this condition.
Justin Goedde
Cure SMA is an organization that provides invaluable support to families affected by spinal muscular atrophy. They have a user-friendly website that offers a wealth of information and resources. The work they do is truly commendable and has a significant impact on the SMA community. I highly recommend their services and the work they do.
Jeff Simmermon
๐ Cure SMA is doing an amazing job in supporting families affected by spinal muscular atrophy. Their website is a valuable resource for information and community support. I am grateful for their dedication and commitment. Keep up the good work! ๐
Sarah Burn
I recently came across a fantastic organization that supports families affected by spinal muscular atrophy. Their website provides a wealth of information and resources. I am impressed with the dedication and commitment of the team. They are doing a great job in making a positive impact in the SMA community. Highly recommend their services!
Lisa Vo
Cure SMA is an organization that is making a real difference in the lives of families affected by spinal muscular atrophy. Their website offers a wealth of information and resources. I am thankful for their dedication and commitment to raising awareness and funds for research. Highly recommend their services!
Gianni Marletta
๐ I recently discovered Cure SMA and I am truly impressed with the support they provide to families affected by spinal muscular atrophy. Their website, curesma.org, is an excellent resource for information and community support. I appreciate their dedication and highly recommend their services. ๐
Sonia Kery
I recently discovered an amazing organization that supports families affected by spinal muscular atrophy. Their website is a valuable resource for information and assistance. The work they do is truly commendable, making a positive impact in the SMA community. I highly recommend their services to anyone in need of support.
Grace Geaga
Cure SMA is doing a tremendous job supporting families affected by spinal muscular atrophy. Their website offers a wealth of information and resources. I am impressed with their dedication and commitment to making a difference. Highly recommend their services!
Josh Nimoy
Cure SMA is a reliable organization that provides support to families affected by spinal muscular atrophy. Their website offers a wealth of resources and information. I appreciate their commitment to making a positive impact in the SMA community. I highly recommend their services!
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Cure SMA provides support to patients and families affected by spinal muscular atrophy and funds and directs research leading the way to a cure for SMA.
Cure SMA: Providing Support and Funding Research for Spinal Muscular Atrophy
Cure SMA is a non-profit organization that provides support to patients and families affected by spinal muscular atrophy (SMA) and funds research leading the way to a cure for this debilitating disease. SMA is a rare genetic disorder that affects the muscles used for movement, breathing, swallowing, and speaking. It is caused by a mutation in the survival motor neuron 1 (SMN1) gene, which leads to the loss of motor neurons in the spinal cord and brainstem.
Cure SMA was founded in 1984 by parents of children with SMA who were frustrated with the lack of information and resources available at that time. Since then, Cure SMA has grown into an international organization with chapters across North America and partnerships around the world. The mission of Cure SMA is to accelerate research towards a treatment or cure for all types of SMA while providing support to those affected by this disease.
One of the main ways Cure SMA supports patients and families affected by SMA is through their comprehensive care program. This program connects families with medical professionals who specialize in treating individuals with neuromuscular disorders like SMA. The care program also provides educational resources on topics such as nutrition, respiratory care, physical therapy, occupational therapy, speech therapy, assistive technology devices, clinical trials participation opportunities.
In addition to providing support services directly to patients and families affected by SMAs CureSMA also funds research aimed at finding treatments or cures for all types of SMAs. To date they have invested over $80 million into research projects focused on developing new therapies or improving existing ones.
One example of their funding efforts includes supporting clinical trials testing new drugs designed specifically for treating SMAs caused by different mutations within SMN1 gene; these drugs are known as "SMN upregulators." Another example includes funding basic science studies aimed at understanding how SMN protein functions normally within cells so researchers can develop more effective therapies targeting its dysfunction in people living with various forms of SMAs.
CureSMA's commitment towards finding treatments or cures has led them into partnerships with other organizations working towards similar goals such as Muscular Dystrophy Association (MDA), National Institutes Health (NIH), National Institute Neurological Disorders Stroke(NINDS), Parent Project Muscular Dystrophy(PPMD).
The organization's dedication towards supporting patients/families impacted by this condition while simultaneously investing heavily into cutting-edge scientific research makes it one-of-a-kind among non-profits dedicated solely toward curing neuromuscular diseases like spinal muscular atrophy(SMA).
In conclusion,CureSMA plays an essential role in advancing our understanding about Spinal Muscular Atrophy(SMA) while providing much-needed support services directly impacting patient lives today!
- Website
- curesma.org
- info@curesma.org
- Address
- 925 busse road
- Categories
- Non-profit organization management