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American Beckwith-Wiedemann Foundation

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About American Beckwith-Wiedemann Foundation

The American Beckwith-Wiedemann Spectrum Family Foundation is a nonprofit organization that supports individuals and families affected by Beckwith-Wiedemann Spectrum (BWSp). The foundation provides accessible information about the condition, shares updates on ongoing research and foundation initiatives, and fosters a supportive community through advocacy and education. It also organizes community events, including a planned 2027 conference, and offers contact resources for those seeking more information. The organization's stated mission is to ensure that no family affected by BWSp faces the condition alone.