Action medical research

Founded in 1952 by Duncan Guthrie, the charity originally operated as the National Fund for Poliomyelitis Research before evolving into Action Medical Research. It has spent over 70 years funding medical breakthroughs, starting with the development of the first UK polio vaccines and continuing to support research into rare diseases, premature birth, and childhood cancers.

The organization is specifically focused on funding medical research to develop treatments, vaccinations, and cures for children. Their mission targets conditions such as rare diseases, premature birth and pregnancy complications, and childhood cancers, aiming to save and change children's lives through scientific advancement.

Registered charity numbers 208701 in England & Wales and SC039284 in Scotland, the charity operates from its headquarters located at 5th Floor, 167-169 Great Portland Street, London, W1W 5PF. This central London location serves as the base for their operations and administrative functions.

To get involved, individuals can participate in their cycling and running challenges, such as the Race the Sun series or other team challenges. Supporters can also contribute through donations, regular gifts, or by volunteering, with general enquiries and donation updates handled via email or telephone.

The website states that under charity law, donations are generally not refundable except in specific circumstances like an administrative error. However, refunds may be processed for purchases if an error occurs, and requests should be directed to the Supporter Care team.

Reviewers consistently praise the organization for being well-managed, well-organized, and having a passionate, knowledgeable staff. Many users highlight the dedication of the team and the positive impact the charity has on individuals affected by diseases.

As of the latest data, the Trustburn listing shows a 3.9 out of 5 rating from 10 reviews. The feedback spans from December 2022 to October 2023, with the most recent review dated October 26, 2023.

The charity highlights its history of significant medical breakthroughs, including discovering the importance of folic acid to prevent spina bifida and developing the use of ultrasound technology in pregnancy. These achievements demonstrate a long track record of impactful research funding.

The organization runs various events including the Race the Sun triathlon-style series, which pits teams against each other in a race against the setting sun. They also offer running and cycling challenges ranging from 20 miles to hundreds of miles across the UK and abroad.

The charity notes that child health research is underfunded in the UK, with relatively little government or pharmaceutical funding available. This lack of funding is identified as the biggest obstacle to achieving new breakthroughs for children, making the charity's work critical.

For those wishing to make a formal complaint, the procedure involves writing to Kabba Njie, Director of Finance, IT & Operations, at the London headquarters. The organization aims to acknowledge and investigate complaints, aiming to reply within two weeks.

The website mentions that donations arising from sponsored events are typically not dependent on the supporter completing the event. Consequently, these donations cannot be refunded if the event or challenge is not completed by the participant.

The charity operates under the Fundraising Regulator and adheres to its Fundraising Promise and The Code of Fundraising Practice. This membership ensures they follow established standards for fundraising activities and supporter interactions.

You can reach Action medical research by phone at 01403 210406 or by e-mail at info@action.org.uk.

The official website of Action medical research is action.org.uk.