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On Aug 11,2020 I was diagnosed with Chronic Ideopa...

On Aug 11,2020 I was diagnosed with Chronic Ideopathic Uticaria. I was prescribed Xolair a monthly shot by #novartis / the only medicine to treat my condition that costs $1,300/monthly. Since that day I have been trying extremely hard to get the shot through a "patient care program" by Alio Health Group. I have been unsuccesful. Both of my insurance providers #greenshield & #sunlifecanada have approved me for the very expensive drug. It has been 25 days (18 biz days) of complete agony, sleepless nights, itchyness, burning sensations, inability to work, side effects from all of the other drugs including high dosages of prednisone which has resulted in SHINGLES and of course my mental health has suffered. I have emailed and called Alio almost daily, have cried on the phone, have demanded and begged, nothing has happened. They have no regard for their customers/ patients, they are unresponsive and to this day I have not been booked for an appointment (September 4,2020). My condition is severe, it requires this medication and their inhumane treatment and the added stress of dealing with this program has been a nightmare. Two days ago, my allergist sent the prescription to a pharmacy and I was able to receive the shot TODAY! It takes 24 hours for a pharmacy to get it, it is NOT the protocol #novartis wants, why, I don't know. I am a lucky person who has two insurance providers, if I did not have this, I would still be at the mercy of Alio Health group to provide me with the medicine/ an appointment to receive the shot. A lot of people are in this situation, as they cannot afford the medicine, and that is unacceptable. I am using my anger, frustration and pain to ensure there is change, I will be sending formal complaints and fighting this inhumane treatment to ensure people don't have to suffer for months before accessing a critical medicine.

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